Learning to manage activity levels is vital to managing the illness itself. Because of the remitting-relapsing pattern of symptoms that is common, patients often exert themselves on a “good” day to make up for days lost, followed by many days of post-exertion malaise/relapse. This cycle, referred to as push-crash, can have detrimental physical and emotional consequences. Educating patients about this tendency and helping them to establish more stable patterns of planned activity followed by planned rest can be therapeutic. Establishing an “energy envelope” that sets boundaries and limits is one approach to pacing shown to be successful .
If you are typical of the person with CFS, obtaining a diagnosis has been a frustrating experience. You are not alone in your frustration.
I was diagnosed with Chronic Fatigue Syndrome and my story is one of success, after approximately 10 years of suffering and working through the symptoms and afflictions. I am happy to say I play tennis three days per week, swim on a regular basis and keep a healthy diet.
*Common symptoms include:
- Sudden severe fatigue, especially following a flu-like illness
- Sleep that isn’t refreshing
- Muscle and joint aches without swelling
- Intense or changing patterns of headaches
- Sore throat
- Swollen lymph glands
- Memory problems/inability to concentrate