Author Hillenbrand Speaks To 'Elle' Magazine About Life with CFS

Rituximab Shows Early Promise In Alleviating CFS  

  Autoimmune Theory For CFS Gains Traction

   Judge Who Ruled For Whittemore Institute
In Campaign Donation Flap

 Washoe County DA/Justice System
 Under National Scrutiny


 Chronic Fatigue Syndrome
(CFS) News
 Features
Tuller:   Putting the CDC's Historical Record In Focus

L.A. Times:  Whirlwind Year for 'UnBroken's' Zamperini

Alter/Lo Retract Paper Associating CFS
with Murine Leukemia Viruses


NY Times:  PNAS Editors 'Encouraged' Authors to
Retract MLV/CFS Study


10 Million Dollars Donated to CFS Research By the Hutchins Family Foundation 

Llewellyn King for Real Clear Science:   CFS is Misunderstood
 
International Consensus Case
 Definition To Be Published


Journal of Science Editors Demand Public Retraction of Link Between CFS and Retroviral Sequences

New York Times' Tuller:  Inconsistent Case
Definition Distinctions A Problem

Meet The CFS Community's Newest Author:  Elisabeth Tova Bailey 

Wall Street Journal:   Lyndonville Outbreak and David Bell on his "Greatest Fear" 

 Silverman and Virology Community Ready to Put Lid on XMRV:  Chicago Tribune

 Lyndonville Clinician, Dr. David Bell, Urges Community to Fund Private Research:   "Profession I Love has Failed Miserably" 

New Study:   CDC's Revised Research  Definition  Flawed

Jason on CFS:  New York Times

A Disease Like No Other:   The Personal Costs of CFS

   


As Band Plays On, ME/CFS Community Deals with Recent Deaths

As the recent deaths of several well-known sufferers have shaken the ME/CFS community, questions raised about the paucity of accurate coverage on effects of the disease. 
  


Beautiful Spirit Remembered:    CFS Community Mourns a Loss:  Tribute To Amberlin Wu

 



  

 Short Takes 

 

CFS Community Experiences Recent Losses

Numerous deaths have recently shook the CFS community:  Amberlin Wu, Emily Collingridge, Carole Damon, and Victoria Webster.   Many of these deaths have been to younger CFS patients who were active, in some way or another, in CFS advocacy.   A story about Victoria Webster can be read in the Burton Mail. 

Burton Mail/Victoria Webster

Another excellent story, featuring Emily Collingridge, was written by Scott Jordan Harris for 'The Guardian'.  

Emily Collingridge

Amberlin Wu was a charming young woman who brought a spark of joy to many lives, and Tina Tidmore has written a wonderful tribute, posted above.   I also found this link.  

Amberlin Wu

 

 

                       Best wishes to all,

                                        Craig Maupin  

 

 
 Series >   Research   Personal Stories
Full list of Series on the Archives Page

Advocacy Ruts 
1 2 3 4 5

A Disease Like No Other
1 2 3 4 5

Shaky Foundation
1 2 3 4 5

CFS at the NIH
1 2 3 4 5

Interview with Dr. Vivian Pinn, Director of ORWH at the NIH

International Consensus Case Definition To Be Published

OP/ED:    Common Language Spoken At CDC's Stakeholder's Meeting In Atlanta

 

CFS:  Author Finds Beauty and Meaning in the Life of a Snail

Author Escapes Illness with Stirring Seabiscuit

Hillenbrand Discusses  CFS

Skloot's essays, poems make waves


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