ABC News:   Enterovirus Link To Be Explored 

  US District Court:   NIH Violated Federal Laws
 in Withholding CFS Documents


Were HHS Efforts in 1994 to Redefine CFS An Effort to Make a Distinct Ilness "Evaporate"?  

  Washington Post:   CFS Definitions Muddy The Water, As New Research Offers Hope
 Chronic Fatigue Syndrome
(CFS) News
 Features
Massey University Study:   CFS Carries a High Personal Cost

Llewellyn King:  Waiting for an Awakening?

Author Hillenbrand Speaks To 'Elle' Magazine About Life with CFS

 Unique Antibodies Found in Subset of CFS Patients:   Ohio State

   Discover Magazine:   Could B Cells Be the Cause of CFS?  

  Tuller: "Fatigue" Label/Definition Comes Under Scrutiny   

Harvard Student Speaks Out About Severity Of "Devastating Disease"

Tuller:   Federal Funding for Immunological Breakthroughs Lags


Patient Concerned About Losing Access to Ampligen

Recordkeeping and FOIA Compliance
 in the CFS Program at the NIH

Tuller:   Putting the CDC's Historical Record In Focus

L.A. Times:  Whirlwind Year for 'UnBroken's' Zamperini

Beautiful Spirit Remembered:    CFS Community Mourns a Loss:  Tribute To Amberlin Wu

Meet Elisabeth Tova Bailey 

Jason on CFS:  New York Times

A Disease Like No Other:   The Personal Costs of CFS

   
   
   CFS Linked to Unique MRI Abnormalities and Inflammation:  Stanford



 
 
  

 Short Takes 

November 2014

November 20-21st, award winning author Elisabeth Tova Bailey will be reading from her powerfully evocative book, The Sound of a Wild Snail Eating.  Elisabeth is the winner of the 2011 John Burroughs Medal, an award giving to an outstanding nature writer each year in honor of essayist John Burroughs.   

More about the event can be read at the following link:

Elisabeth Tova Bailey Fundraising Event

 The event is designed to promote and fund a proposed research project into the microbiome and CFS by Dr. Ian Lipkin of Columbia University.    Given the recent research findings on CFS and autoimmunity, as well as Dr. Lipkin's stature in the research world, this project is promising.

 Donations to the microbiome project can be made at this link.  

 Donate to Lipkin Study on Microbiome  

 Due to a lack of federal commitment to CFS research, many advocates and scientists believe private funding is the only way in which a breakthrough on CFS is possible.  

                       Best wishes to all,

                                        Craig Maupin  

 

 
 Series >   Research   Personal Stories
Full list of Series on the Archives Page

Advocacy Ruts 
1 2 3 4 5

A Disease Like No Other
1 2 3 4 5

Shaky Foundation
1 2 3 4 5

CFS at the NIH
1 2 3 4 5

Interview with Dr. Vivian Pinn, Director of ORWH at the NIH

International Consensus Case Definition To Be Published

OP/ED:    Common Language Spoken At CDC's Stakeholder's Meeting In Atlanta

 

CFS:  Author Finds Beauty and Meaning in the Life of a Snail

Author Escapes Illness with Stirring Seabiscuit

Hillenbrand Discusses  CFS

Skloot's essays, poems make waves







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