Links

The following is a list of links to CFS-related websites. Are you interested in exchanging links with The CFS Report?  If so, please contact us.

 

Organizations

National

The Invisible Disabilities Association of Canada is a non profit group made up of volunteers who give their time to assist those with disabilities resulting from Chronic Fatigue Syndrome, Fibromyalgia, Environmental Sensitivities, and associated illnesses.

M.E Sufferers (Malta) is a Maltese website that aims to inform people about the incapacitating and complex chronic condition called M.E (myalgic encephalomyelitis), which is highly unrecognized in Malta

MERGE - ME Research Group for Education and Support - National UK charity funding, high-quality biomedical research into Myalgic Encephalomyelitis (also known as ME/CFS). This group also assists in getting stories of those with ME out to the public.

The National Alliance for Myalgic Encephalomyelitis was established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease that has afflicted nearly a million people in the U.S. and millions worldwide.

The CFIDS Association of America


State and Regional

Chronic Fatigue/Fibromyalgia Organization of Georgia - Georgia's Beacon of Hope for those with CFS and Fibromyalgia. 

Massachusetts CFIDS/FM Association - Association and web site maintained by volunteers, and updated quarterly with Massachusetts state organizational information

Network ME is a now firmly established registered charity providing vital services to those suffering from ME/CFS in North London and the surrounding counties.

PANDORA -- Marla McKibben's Florida-based advocacy group does a great job with national as well as local advocacy. The group's goal is "to make a contribution to the process of finding a cure for Chronic Fatigue Syndrome (CFS) Fibromyalgia (FMS) and other Neuroendocrineimmune disorders". They also have an email list.

Rocky Mountain CFIDS/Fibromyalgia Association - The Rocky Mountain CFIDS / FMS Association is a Denver Colorado based non-profit organization for those affected by and treat Chronic Fatigue Immune Dysfunction Syndrome (CFIDS / CFS) and Fibromyalgia (FMS).

The Wisconsin CFS Association - A clearinghouse for CFS information within the state of Wisconsin

The Vermont CFIDS Association - The Burlington-based Vermont Association works diligently on behalf of those with CFIDS both in the state of Vermont and beyond.


Local Support Groups

CFS-Support - Northern Virginia CFS/FMS Support Group. Website offers meeting info, newsletter, e-mail list, references, and bookstore for CFS, FMS, and related disorders.

The Clwyd ME Support Group offers help and information for any sufferer who has ME / CFS or FMS in the North East Wales area.  The group also serves everyone involved in care, whether they are family, friends or health professionals.   

M.E/Chronic Fatigue Syndrome/Fibromyalgia Association of Queensland, Inc - This terrific support group provides support, information and practical assistance to people affected by ME/CFS/FM, and to work towards a cure for these illnesses.

Northern VA (NOVA) Chronic Fatigue Syndrome / ME & Fibromyalgia Support Group - Providing Help & Hope for People with CFS/ME & FMS in the National Capital
Area & beyond.

 

Community

 

About.com's Guide to Fibroymyalgia and ME/CFS -   Adrienne Dellwo is an experienced journalist who was diagnosed with fibromyalgia in November 2006.  The guide for About.com's site lays out an impressive set of links and information on CFS/ME and Fibromyalgia.

Brainfog.org - The MOOSE is Loose!!!! Are you looking for a community that keeps it light and cheerful, despite the trying circumstances of chronic illness?  If so, check out the moose!

Co Cure - The largest archive of CFIDS and ME information on the net. Listserv email.

DFW CFS/ME and FM Information Distribution Services - This all-volunteer site, run by Lori Fidler, exists to educate, spread community information and provide resources about CFS/ME, FM or the related illnesses for those who have these illnesses, their family, friends and associates or just the casual web traveler. Our information is updated quite often (most frequently, there are daily information/news updates), so come back and visit us soon!

Immune Support - Nutritional Supplements  - Rich Carson's site sells supplements and provides news, forums, and information on CFS.

Foggy Friends - A community for those with CFS and Fibromylgia to share thier experiences and find an understanding friendship.

Friends With Fibro - Support and resources for those with Fibromyalgia and CFS.

Teens with CFS/FM - Site was created for teens with CFS, by a teen with CFS.

 

CFS and ME Related Sites

 

Carrigon's CFIDS/FM/CFS/ME Related Links - A compilation of major CFS links.

CFS Corner - This site has research and information for people with CFS, caregivers, and medical personnel who deal with Chronic Fatigue Syndrome/Chronic Fatigue and Immune Dysfunction Syndrome.

CFS Days - This site has some well-done cartoons.

CFIDS Insights - Well-done site by Mark Leavitt, providing information on CFIDS.

CFS Italy - The website CFSITALIA.IT was created in to inform patients, their relatives, and their friends,, in clear and simple terms, about CFS (also known as CFIDS or ME). The Forum offers the opportunity to share experience, advice, and stories about life with CFS. There is also a "FREE SPACE", where readers can find friendship and solidarity.

cfsrecovery.org - Frank Jenner's site compiles a list of treatments and theories of CFS.

HealingWell.com - The CFS Resource Center of HealingWell.com

Health Care Information Resources - CFS Directory - A directory of CFS resources compiled by Tom Flemming.

Help With ME , Making Living with ME/CFS Easier - A huge resource of products to aid people with ME/CFS. From lightweight cutlery to Wheelchairs. A great place to find that special gift or funny card. Find inspiring books, relax music and special products for light, sound or chemical sensitivities. Or join the forum for a chat.

Holistic Health Topics and CFS

Hypermobility and Fibromyalgia Support Site - CFS Info - Site provides information and resources on CFS.

Life with ME/CFS - Essays by Mary Schweitzer - A collection of informative essays by Dr. Mary Schweitzer on the complex issues surrounding CFS research and clinical care, such as the need for a more stringent definition and the lack of biomedical research for CFS. Worth a read.

My CFIDS Site - PWC Jaime Wellman's site promotes CFIDS Awareness and provides resources.

ME Free For All.org is an organisation for all those with an interest in M.E. - sufferers, their carers, doctors & researchers - to come together

N ME C - The National M.E. Centre - This U.K.-based Centre provides a unique blend of help, care and support to sufferers and the families of those with M.E.

Reaching Out - One of the top 5 web sites for fibromyalgia and chronic fatigue syndrome/ME support!  10,000 visitors come to this website a year and join one of the small support groups.

Robert Suhadolnik - The site that explains the work of Robert Suhadolnik at Temple University.

Satori-5 - An information and general resource website for Myalgic Encephalomyelitis (ME), Multiple Chemical Sensitivity (MCS), Hazardous Radiations Sickness (HRS), and Alternative Health, including the webmasters own harrowing experiences with a combination of these illnesses.

Take M.E. Seriously - This site explains M.E/CFS from the perspective of a patient, .in an straightforward, simple manner

The Invisible Disabilities Advocate: Do you know someone with a chronic illness or pain? Do you struggle with what to say and what not to say? Or do you, yourself, have a debilitating illness or injury? Do your loved ones have difficulty understanding? Visit soon!


Treatments

 

CFS and Medical Politics - Julian Robinson provides information on the medical poltiics of CFS, as well as information on various treatment options.

CFS is a Call for Soulwork - An inspirational, holistic book and website to empower people with CFS/fibromyalgia/chronic illness, their friends, family, and healers. The site and book takes a holistic approach covering mind, emotions, spirit, and body.

The Institute for Molecular Medicine, based in Huntington Beach, CA, applies basic and translational molecular research approaches to better understand and eventually treat catastrophic human chronic diseases.

Irritable Bowel Syndrome  -- IBS treatment without drugs. Simple effective technique. Level of improvement and benefit depends on you.

Help for Irritable Bowel Syndrome (IBS ) - Irritable Bowel Syndrome education, support and treatments for all IBS symptoms.

 

Personal  CFS Sites

 

Beads of Hope - Nan Talbot has a talent for creating jewelry that is colorful, yet simple. 15% of the proceeds will be donated to CFS research.

CFS/ME and Me - A web log by a 17 year old about life, and trying to achieve her goals, while having CFS.

Barbara Feick Gregory's Chronic Fatigue Syndrome Site - Barbara Feick Gregory's extensive CFS site provides information on CFS symptoms, treatments, and her personal story.

In Bed with My Doona - Gayle Walter's site uses her experiences with CFS to educate the public. She has a special support group for mothers and expectant mothers with CFS/ME.

 

General Links

 

DirPedia.com - combining a dictionary, an encyclopedia and a web directory 

Dr. Eddys Integrated Medical Clinic & Ayurveda School - The Integrated Medical Clinic and Ayurveda School is a unique healthcare facility, combining the strengths and knowledge of both traditional western and alternative medicine in a holistic manner.

 Health6.com provides health resources and news.

Lupus Answers - The Complete Guide to Understanding Lupus and How You Can Learn to Live With It 

Search for Chronic Fatigue Syndrome on Yahoo.

Spears & Macleod - Spears & MacLeod Pharmacy, Yarmouth, Nova Scotia, Canada