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Links
The following is a list of links to
CFS-related websites. Are you interested in exchanging links
with The CFS Report? If so, please contact us.
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| Organizations |
National
The Invisible Disabilities Association of Canada is a
non profit group made up of volunteers who give their time
to assist those with disabilities resulting from Chronic
Fatigue Syndrome, Fibromyalgia, Environmental Sensitivities,
and associated illnesses.
M.E Sufferers (Malta) is a Maltese website that aims to
inform people about the incapacitating and complex chronic
condition called M.E (myalgic encephalomyelitis), which is
highly unrecognized in Malta
MERGE - ME Research Group for Education and Support -
National UK charity funding, high-quality biomedical
research into Myalgic Encephalomyelitis (also known as
ME/CFS). This group also assists in getting stories of those
with ME out to the public.
The National Alliance for Myalgic Encephalomyelitis was
established to address the issues of recognition and
definition, and to raise awareness of this devastating
neuroimmune disease that has afflicted nearly a million
people in the U.S. and millions worldwide.
The CFIDS
Association of America
State and Regional
Chronic
Fatigue/Fibromyalgia Organization of Georgia - Georgia's
Beacon of Hope for those with CFS and Fibromyalgia.
Massachusetts CFIDS/FM Association - Association and web
site maintained by volunteers, and updated quarterly with
Massachusetts state organizational information
Network ME is a now firmly established registered
charity providing vital services to those suffering from
ME/CFS in North London and the surrounding counties.
PANDORA -- Marla McKibben's Florida-based advocacy group
does a great job with national as well as local advocacy.
The group's goal is "to make a contribution to the process
of finding a cure for Chronic Fatigue Syndrome (CFS)
Fibromyalgia (FMS) and other Neuroendocrineimmune
disorders". They also have an email list.
Rocky Mountain CFIDS/Fibromyalgia Association - The
Rocky Mountain CFIDS / FMS Association is a Denver Colorado
based non-profit organization for those affected by and
treat Chronic Fatigue Immune Dysfunction Syndrome (CFIDS /
CFS) and Fibromyalgia (FMS).
The
Wisconsin CFS Association - A
clearinghouse for CFS information within the state of
Wisconsin
The Vermont CFIDS Association - The Burlington-based
Vermont Association works diligently on behalf of those with
CFIDS both in the state of Vermont and beyond.
Local Support Groups
CFS-Support - Northern Virginia CFS/FMS Support Group.
Website offers meeting info, newsletter, e-mail list,
references, and bookstore for CFS, FMS, and related
disorders.
The Clwyd
ME Support Group offers help and information for any
sufferer who has ME / CFS or FMS in the North
East Wales area.
The group also serves everyone involved in care,
whether they are family, friends or health professionals.
M.E/Chronic Fatigue Syndrome/Fibromyalgia Association of
Queensland, Inc - This terrific support group provides
support, information and practical assistance to people
affected by ME/CFS/FM, and to work towards a cure for these
illnesses.
Northern VA (NOVA) Chronic Fatigue Syndrome / ME &
Fibromyalgia Support Group - Providing Help & Hope for
People with CFS/ME & FMS in the National Capital
Area & beyond.
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| Community |
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About.com's Guide to Fibroymyalgia and ME/CFS -
Adrienne Dellwo is an experienced journalist who was
diagnosed with fibromyalgia in November 2006. The
guide for About.com's site lays out an impressive set of
links and information on CFS/ME and Fibromyalgia.
Brainfog.org - The MOOSE is Loose!!!! Are you looking
for a community that keeps it light and cheerful, despite
the trying circumstances of chronic illness? If so,
check out the moose!
Co Cure
- The largest archive of CFIDS and ME information on the
net. Listserv email.
DFW CFS/ME and FM Information Distribution Services - This
all-volunteer site, run by Lori Fidler, exists to educate, spread community
information and provide resources about CFS/ME, FM or the
related illnesses for those who have these illnesses, their
family, friends and associates or just the casual web
traveler. Our information is updated quite often (most
frequently, there are daily information/news updates), so
come back and visit us soon!
Immune Support - Nutritional Supplements - Rich
Carson's site sells supplements and provides news, forums,
and information on CFS.
Foggy Friends - A community for those with CFS and
Fibromylgia to share thier experiences and find an
understanding friendship.
Friends With Fibro - Support and resources for those
with Fibromyalgia and CFS.
Teens with CFS/FM - Site was created for teens with CFS,
by a teen with CFS.
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| CFS and ME Related Sites |
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Carrigon's CFIDS/FM/CFS/ME Related Links - A compilation
of major CFS links.
CFS
Corner - This site has research and information for
people with CFS, caregivers, and medical personnel who deal
with Chronic Fatigue Syndrome/Chronic Fatigue and Immune
Dysfunction Syndrome.
CFS Days - This site has some well-done cartoons.
CFIDS Insights - Well-done site by Mark Leavitt,
providing information on CFIDS.
CFS
Italy - The website CFSITALIA.IT was created in to
inform patients, their relatives, and their friends,, in
clear and simple terms, about CFS (also known as CFIDS or
ME). The Forum offers the opportunity to share experience,
advice, and stories about life with CFS. There is also a
"FREE SPACE", where readers can find friendship and
solidarity.
cfsrecovery.org - Frank Jenner's site compiles a list of
treatments and theories of CFS.
HealingWell.com - The CFS Resource Center of
HealingWell.com
Health Care Information Resources - CFS Directory - A
directory of CFS resources compiled by Tom Flemming.
Help
With ME , Making Living with ME/CFS Easier - A huge
resource of products to aid people with ME/CFS. From
lightweight cutlery to Wheelchairs. A great place to find
that special gift or funny card. Find inspiring books, relax
music and special products for light, sound or chemical
sensitivities. Or join the forum for a chat.
Holistic Health Topics and CFS
Hypermobility and Fibromyalgia Support Site - CFS Info -
Site provides information and resources on CFS.
Life with ME/CFS - Essays by Mary Schweitzer - A
collection of informative essays by Dr. Mary Schweitzer on
the complex issues surrounding CFS research and clinical
care, such as the need for a more stringent definition and
the lack of biomedical research for CFS. Worth a read.
My CFIDS Site
- PWC Jaime Wellman's site promotes CFIDS Awareness and
provides resources.
ME
Free For All.org is an organisation for all those
with an interest in M.E. - sufferers, their carers, doctors
& researchers - to come together
N
ME C - The National M.E. Centre - This U.K.-based Centre
provides a unique blend of help, care and support to
sufferers and the families of those with M.E.
Reaching Out - One of the top 5 web sites for
fibromyalgia and chronic fatigue syndrome/ME support!
10,000 visitors come to this website a year and join one of
the small support groups.
Robert Suhadolnik - The site that explains the work of
Robert Suhadolnik at Temple University.
Satori-5 - An information and general resource website
for Myalgic Encephalomyelitis (ME), Multiple Chemical
Sensitivity (MCS), Hazardous Radiations Sickness (HRS), and
Alternative Health, including the webmasters own harrowing
experiences with a combination of these illnesses.
Take M.E. Seriously - This site explains M.E/CFS from
the perspective of a patient, .in an straightforward, simple
manner
The
Invisible Disabilities Advocate: Do you know someone
with a chronic illness or pain? Do you struggle with what to
say and what not to say? Or do you, yourself, have a
debilitating illness or injury? Do your loved ones have
difficulty understanding? Visit soon!
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| Treatments |
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CFS and Medical Politics - Julian Robinson provides
information on the medical poltiics of CFS, as well as
information on various treatment options.
CFS is a Call for Soulwork - An inspirational, holistic
book and website to empower people with
CFS/fibromyalgia/chronic illness, their friends, family, and
healers. The site and book takes a holistic approach
covering mind, emotions, spirit, and body.
The
Institute for Molecular Medicine, based in Huntington
Beach, CA, applies basic and translational molecular
research approaches to better understand and eventually
treat catastrophic human chronic diseases.
Irritable Bowel Syndrome -- IBS treatment without
drugs. Simple effective technique. Level of improvement and
benefit depends on you.
Help
for Irritable Bowel Syndrome (IBS ) - Irritable Bowel
Syndrome education, support and treatments for all IBS
symptoms.
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| Personal CFS Sites |
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Beads of Hope - Nan Talbot has a talent for creating
jewelry that is colorful, yet simple. 15% of the proceeds
will be donated to CFS research.
CFS/ME and
Me - A web log by a 17 year old about life, and trying
to achieve her goals, while having CFS.
Barbara Feick Gregory's Chronic Fatigue Syndrome Site -
Barbara Feick Gregory's extensive CFS site provides
information on CFS symptoms, treatments, and her personal
story.
In Bed with My Doona - Gayle Walter's site uses her
experiences with CFS to educate the public. She has a
special support group for mothers and expectant mothers with
CFS/ME.
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| General Links |
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DirPedia.com -
combining a dictionary, an encyclopedia and a web directory
Dr.
Eddys Integrated Medical Clinic & Ayurveda School - The
Integrated Medical Clinic and Ayurveda School is a unique
healthcare facility, combining the strengths and knowledge
of both traditional western and alternative medicine in a
holistic manner.
Health6.com provides health resources and news.
Lupus Answers - The Complete Guide to Understanding
Lupus and How You Can Learn to Live With It
Search for Chronic Fatigue Syndrome on Yahoo.
Spears & Macleod - Spears & MacLeod Pharmacy, Yarmouth,
Nova Scotia, Canada
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